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 Canavan Research Foundation :: Main
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 Subject :Websites.. 09-02-2010 11:24:24 
sarahemily
Joined: 09-02-2010 11:18:59
Posts: 9
Location: 

Hello all,


Jacob's Cure is in the middle of creating a new website and plans to have a page dedicated to all of your families.  Does anyone else have a website or blog related to their child or Canavan disease that they would like us to link to?  Please let us know!

 

Best,

Sarah Goshman

Assistant Director

Jacob's Cure

sarah@jacobscure.org

www.jacobscure.org
 Subject :Re:Websites.. 14-02-2010 13:50:49 
Adyonline
Joined: 10-11-2009 15:09:07
Posts: 14
Location: Norfolk - UK

Hi

Please do link to Ben's website www.allaboutben.co.uk   Any news on your charity launch in London?

Sally Fletcher
 Subject :Re:Websites.. 18-02-2010 10:10:31 
sarahemily
Joined: 09-02-2010 11:18:59
Posts: 9
Location: 

Hi Sally,

 

Got it!  No news yet, but I will certainly send details as soon as we have any.


Thanks!

 

~Sarah
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