Canavan Research Foundation::Main

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Topics	Replies	Views	Last Post
GJ tube by lovemyboys on 30-07-2010 09:33:09	1	9	Re:GJ tube by snwboardchik947 on 30-07-2010 17:13:51
Canavan Conference by sarahemily on 21-06-2010 11:25:52	6	118	Re:Canavan Conference by sarahemily on 28-07-2010 13:52:57
bad mommy! by vincent on 21-07-2010 12:11:13	3	50	Re:bad mommy! by lovemyboys on 27-07-2010 13:15:05
Removing tonsils & adenoids-botox for secretions by lovemyboys on 13-07-2010 14:43:19	5	62	Re:Removing tonsils & adenoids-botox for secretions by Sally on 25-07-2010 14:48:37
Hershey Park Penn. by snwboardchik947 on 12-07-2010 07:46:51	0	30	Hershey Park Penn. by snwboardchik947 on 12-07-2010 07:46:51
Disneyworld? by vincent on 07-07-2010 20:40:01	2	46	Re:Disneyworld? by Sally on 08-07-2010 04:46:57
tommy by tomsmom on 21-06-2010 10:43:55	4	121	Re:tommy by Sally on 03-07-2010 01:25:34
Seizures and O2 by lovemyboys on 21-06-2010 10:42:13	4	117	Re:Seizures and O2 by Sally on 03-07-2010 01:22:30
Sight by steve on 27-06-2010 11:20:24	4	88	Re:Sight by Sally on 03-07-2010 01:18:19
Have a Question to Sally by Sarpsmom on 04-06-2010 04:49:04	1	83	Re:Have a Question to Sally by Sally on 03-07-2010 01:15:42
paul and HarleeGraces new website by snwboardchik947 on 21-06-2010 14:09:48	1	64	Re:paul and HarleeGraces new website by sarahemily on 22-06-2010 09:26:25
sleepy by arogers10 on 12-01-2010 15:42:36	10	674	Re:sleepy by steve on 15-06-2010 22:15:13
teeth by Lillianasmom on 10-04-2010 19:12:28	3	310	Re:teeth by steve on 12-06-2010 12:13:10
Happy birthday HarleeGrace by snwboardchik947 on 08-06-2010 21:31:46	1	85	Re:Happy birthday HarleeGrace by lovemyboys on 09-06-2010 17:23:46
Happy Birthday to Lilliana!!! by Lillianasmom on 06-05-2010 16:57:29	2	152	Re:Happy Birthday to Lilliana!!! by Sally on 03-06-2010 00:57:50
CD specialist in Calif? by Kim@ntsad.org on 26-05-2010 14:11:59	1	114	Re:CD specialist in Calif? by vincent on 29-05-2010 13:53:08
Lilliana got a wheelchair :) by Lillianasmom on 06-05-2010 16:47:31	3	207	Re:Lilliana got a wheelchair :) by Lillianasmom on 16-05-2010 11:41:33
Salt Therapy AKA helotherapy??? by Debby on 10-05-2010 09:00:31	1	125	Re:Salt Therapy AKA helotherapy??? by Sarpsmom on 13-05-2010 07:27:17
General Questions Regarding treatment of Canavans. by mithilwane on 05-05-2010 01:24:23	1	181	Re:General Questions Regarding treatment of Canavans. by Debby on 10-05-2010 09:04:56
Using antibiotics by Sarpsmom on 13-04-2010 04:35:22	7	326	Re:Using antibiotics by vincent on 26-04-2010 13:40:04
talking by Lillianasmom on 05-12-2009 21:43:36	6	533	Re:talking by DeclansMom on 12-04-2010 22:29:04
Blog Entries Wanted by sarahemily on 02-04-2010 14:34:17	0	232	Blog Entries Wanted by sarahemily on 02-04-2010 14:34:17
Time if of the essence by give2lavi on 15-03-2010 10:18:09	0	237	Time if of the essence by give2lavi on 15-03-2010 10:18:09
Question on Vomiting by DeclansMom on 07-03-2010 21:30:39	6	438	Re:Question on Vomiting by DeclansMom on 11-03-2010 20:47:10
FYI-Bladder/kidney mostly for older kiddos by arogers10 on 04-02-2010 12:26:56	4	599	Re:FYI-Bladder/kidney mostly for older kiddos by Sally on 03-03-2010 01:12:50
Websites by sarahemily on 09-02-2010 11:24:24	2	371	Re:Websites by sarahemily on 18-02-2010 10:10:31
Sarp hospitalized again by Sarpsmom on 29-01-2010 05:20:12	4	454	Re:Sarp hospitalized again by sam on 02-02-2010 13:06:39
Happy Birthday Ben ! by Sally on 23-01-2010 01:11:30	5	446	Re:Happy Birthday Ben ! by Sarpsmom on 26-01-2010 02:49:38
gene mutation by snwboardchik947 on 13-12-2009 20:40:09	8	618	Re:gene mutation by Patty on 25-01-2010 19:22:48
new jersey by Lillianasmom on 10-01-2010 02:17:07	4	518	Re:new jersey by snwboardchik947 on 23-01-2010 12:08:53
Ben's story by Sally on 15-01-2010 05:12:43	3	403	Re:Ben's story by DeclansMom on 18-01-2010 20:44:24
what is the vojta method? by Lillianasmom on 10-01-2010 02:47:01	1	359	Re:what is the vojta method? by Sally on 15-01-2010 05:02:02
How diagnosis is made by threebabies on 14-12-2009 17:30:39	6	530	Re:How diagnosis is made by Sarpsmom on 13-01-2010 01:37:50
Doctor in California or Texas by paulanis mom on 08-01-2010 04:12:26	9	585	Re:Doctor in California or Texas by paulanis mom on 12-01-2010 21:06:39
throwing up all the time constanley by snwboardchik947 on 09-12-2009 16:16:53	15	997	Re:throwing up all the time constanley by sam on 12-01-2010 14:32:31
Rehabilitation / Exercising Technics for Canavan Children_Question by Auntie_09 on 08-01-2010 10:20:56	1	292	Re:Rehabilitation / Exercising Technics for Canavan Children_Question by Lillianasmom on 10-01-2010 02:40:37
Swollen tissue around the G Tube by Sarpsmom on 05-01-2010 06:04:33	4	1143	Re:Swollen tissue around the G Tube by lovemyboys on 09-01-2010 10:24:43
calories and water intake??? HOw much are your kids getting? by Debby on 27-12-2009 03:09:40	4	438	Re:calories and water intake??? HOw much are your kids getting? by Patty on 01-01-2010 20:23:04
rapid eye blinking by Lillianasmom on 31-12-2009 00:39:00	2	343	Re:rapid eye blinking by snwboardchik947 on 31-12-2009 15:20:08
toilet talk :p by Lillianasmom on 08-12-2009 00:23:05	6	529	Re:toilet talk :p by Lillianasmom on 31-12-2009 00:23:48
Happy Healthy New Year! by arogers10 on 30-12-2009 14:54:44	0	409	Happy Healthy New Year! by arogers10 on 30-12-2009 14:54:44
Paul got amitted to the hospital tonight by snwboardchik947 on 14-12-2009 21:17:38	5	483	Re:Paul got amitted to the hospital tonight by Debby on 28-12-2009 01:54:51
formula by snwboardchik947 on 18-12-2009 21:33:50	0	379	formula by snwboardchik947 on 18-12-2009 21:33:50
Older child ?'s by lovemyboys on 01-12-2009 11:14:21	11	1033	Re:Older child ?'s by snwboardchik947 on 16-12-2009 16:17:05
Desperate for help by threebabies on 14-12-2009 12:34:34	4	417	Re:Re:Desperate for help by threebabies on 14-12-2009 17:25:19
Surgery by Sally on 23-11-2009 15:20:19	14	821	Re:Surgery by Sarpsmom on 06-12-2009 05:12:04
being more active/happy at night by Lillianasmom on 05-12-2009 21:30:55	2	303	Re:being more active/happy at night by Adyonline on 06-12-2009 01:51:14
chewing by Lillianasmom on 05-12-2009 21:18:46	2	350	Re:chewing by Adyonline on 06-12-2009 01:42:35
TREATMENT by Lillianasmom on 05-12-2009 21:13:26	1	318	Re:TREATMENT by snwboardchik947 on 05-12-2009 22:35:14
fundraising by Lillianasmom on 05-12-2009 21:38:11	0	267	fundraising by Lillianasmom on 05-12-2009 21:38:11
Ben by Sally on 23-11-2009 15:22:41	6	679	Re:Ben by Sarpsmom on 05-12-2009 08:45:32
Eye fluttering by snwboardchik947 on 23-11-2009 19:52:28	5	504	Re:Eye fluttering by Sarpsmom on 05-12-2009 07:07:10
Body Massage by snwboardchik947 on 02-12-2009 20:26:18	0	251	Body Massage by snwboardchik947 on 02-12-2009 20:27:59
Website Launched - feedback, ideas and pictures please by Adyonline on 13-11-2009 12:30:12	6	698	Re:Website Launched - feedback, ideas and pictures please by Sally on 23-11-2009 15:18:22
Media coverage... by vincent on 19-11-2009 09:04:15	3	352	Re:Media coverage... by Sally on 23-11-2009 15:15:08
Website Photos by Patty on 20-11-2009 21:14:21	2	373	Re:Website Photos by Patty on 21-11-2009 19:05:58
New families... by vincent on 19-11-2009 18:05:59	1	453	Re:New families... by Adyonline on 20-11-2009 12:36:06
New website - Hi by Sally on 14-11-2009 01:29:45	0	300	New website - Hi by Sally on 14-11-2009 01:29:45

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