Please note that it is now possible to contact each other via email.

Simply view the profile of the person you wish to contact and select the 'Email User' tab. You can then send them a message directly.

Rest assured that no email addresses are revealed and all communications are done directly via the website server. If you receive an email and do not wish to reveal your email address to the sender but do want to reply, then you can also use the same 'Email User' facility on their profile.

You may have noticed on the left hand menu there is now an option to select other Languages. If your first language isn't English then please let me know how you find this interpreter.

This website is completely new. If you have any comments or ideas regarding the website then please do not hesitate to contact the web master

Now when you register on the site, you also have the opportunity to upload an image of yourself plus your child, and also information about your child which will be used in the 'Gallery' of children with Canavan Disease.

If you have any comments or issues then please do not hesitate to contact me